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Prevalência e características das pessoas com necessidades paliativas internadas em serviços hospitalares generalizados : contributo para a tradução e validação da ferramenta NECPAL-CCOMS-ICO© para a população portuguesa
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Advisor(s)
Abstract(s)
Objectivo: contribuir para a tradução e validação da ferramenta NECPAL-CCOMS-ICO©, para a população portuguesa. Esta possibilita a identificação de pessoas com necessidades paliativas (NP).
Método: estudo quantitativo, descritivo, transversal e observacional. A estrutura é baseada nas recomendações da iniciativa STROBE. Foi seguido o processo de tradução e validação de um instrumento até à realização de um pré-teste, com uma amostra de 30 pessoas, internadas em 2 serviços hospitalares, não especializados em Cuidados Paliativos (CP). 11 Médicos e 28 Enfermeiros completaram as 3 primeiras perguntas da NECPAL: “Pergunta Surpresa”, “Procura” e “Necessidade” e outra adicionada para este estudo, respondida a priori, acerca da presença de NP.
Resultados: o grau de concordância entre os dois grupos de profissionais foi pobre. Entre 50-60% da nossa amostra apresentava NP. Neste grupo, a idade média era de 73 anos, os 2 géneros encontravam-se igualmente representados e a maioria vivia no domicílio. Apenas 33,3% tinha sido identificado previamente; sem o auxílio da ferramenta somente metade das pessoas “NECPAL+” teria sido reconhecida.
Conclusão: a elevada prevalência de NP assim como a persistência de sintomas, multimorbilidade e uso de recursos conjugados com a parca identificação prévia, impulsiona a urgência da implementação da NECPAL. Visto que a identificação de pessoas com NP constitui o primeiro passo para uma prestação de CP de qualidade, há que usar ferramentas adequadas que sejam facilitadoras deste processo. Este trabalho poderá impulsionar esta área de investigação e promover a tradução e validação de outras ferramentas indispensáveis para a população portuguesa com NP.
Objectives: to contribute for the translation and validation of the NECPAL-CCOMS-ICO© tool to the Portuguese population. This tool’s purpose is to identify people with Palliative Care needs (PCN). Method: quantitative, descriptive, cross-sectional and observational study. The structure is based on STROBE’s recommendations. The translation and validation process was followed until the pre-test, with a sample of 30 people who were admitted into 2 hospital services, not specialized in Palliative Care (PC). 11 Doctors and 28 Nurses completed the first 3 NECPAL’s questions: “Surprise Question”, “Demand” and “Need”. Another question was added to fulfil the study’s interest and answered a priori about the presence of PCN. Results: the agreement between doctor’s and nurse’s answers was poor. Between 50-60% of patients had PCN. In this group, the average age was 73 years, the 2 genders were equally represented and the majority lived at home. Without the NECPAL only 33,3% were identified. Without the NECPAL’s help, half of the “NECPAL+” people would not have been identified. Conclusion: the high prevalence of NP, persistent symptoms, multimorbility and use of health resources, all allied with the reduced earlier identification of needs, urges to the implementation of NECPAL. Since the identification of people with PCN is the first step to achieve good quality PC, adequate tools should be used to improve this process. This study may boost this field of research and could promote the translation and validation of other essential tools for the Portuguese population with PCN.
Objectives: to contribute for the translation and validation of the NECPAL-CCOMS-ICO© tool to the Portuguese population. This tool’s purpose is to identify people with Palliative Care needs (PCN). Method: quantitative, descriptive, cross-sectional and observational study. The structure is based on STROBE’s recommendations. The translation and validation process was followed until the pre-test, with a sample of 30 people who were admitted into 2 hospital services, not specialized in Palliative Care (PC). 11 Doctors and 28 Nurses completed the first 3 NECPAL’s questions: “Surprise Question”, “Demand” and “Need”. Another question was added to fulfil the study’s interest and answered a priori about the presence of PCN. Results: the agreement between doctor’s and nurse’s answers was poor. Between 50-60% of patients had PCN. In this group, the average age was 73 years, the 2 genders were equally represented and the majority lived at home. Without the NECPAL only 33,3% were identified. Without the NECPAL’s help, half of the “NECPAL+” people would not have been identified. Conclusion: the high prevalence of NP, persistent symptoms, multimorbility and use of health resources, all allied with the reduced earlier identification of needs, urges to the implementation of NECPAL. Since the identification of people with PCN is the first step to achieve good quality PC, adequate tools should be used to improve this process. This study may boost this field of research and could promote the translation and validation of other essential tools for the Portuguese population with PCN.
Description
Tese de mestrado, Cuidados Paliativos, Universidade de Lisboa, Faculdade de Medicina, 2018
Keywords
Necessidades paliativas NECPAL-CCOMS-ICO© Cuidados paliativos Pergunta-surpresa Teses de mestrado - 2018