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O impacto da incapacidade física na qualidade de vida relacionada com a saúde nos doentes oncológicos : um estudo exploratório
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Este estudo pretendeu explorar a relação entre a Incapacidade física e as percepções deQualidade de Vida Relacionada com a Saúde (QDVRS) em doentes oncológicos. E pretendeu tambémconhecer os temas ligados à vivência da incapacidade física e da funcionalidade nesses mesmosdoentes.Para este estudo, foi recolhida uma amostra de conveniência de 26 indivíduos (20 do sexofeminino e 6 do sexo masculino) com diagnóstico médico de doença oncológica, seguidos na Clínicada Dor do IPOLFG. Tendo em conta os objectivos da investigação foram aplicados os seguintesinstrumentos: Functional Assessment Cancer Therapy - General, version 4 (FACT-G, v.4, versãoportuguesa), Medical Outcomes Study 36 - Item Short Form SF - 36, version 2 (SF-36, v.2, versãoportuguesa), Functional Living Índex - Cancer (FLI-C, traduzido e adaptado especialmente para esteestudo), e Termómetro do Distresse. Para além destes instrumentos, 15 dos 26 participantes, foramainda alvo de uma Entrevista Semi-Estruturada, e da Escala Visual Analógica (EVA) da CapacidadeFísica. Os discursos dos participantes foram categorizados num conjunto de Temas associados àexperiência da incapacidade física e da funcionalidade, através da análise de conteúdo das entrevistasrealizadas.A incapacidade física neste estudo foi mensurada através da EVA para a capacidade física eatravés das dimensões dos questionários que fazem apelo à capacidade física, pelo que esta foiinterpretada de acordo com o significado das dimensões desses questionários. Assim ao explorar arelação existente entre a incapacidade física e a QDVRS, verificou-se que a incapacidade física serelaciona de forma positiva com a QDVRS. Verificou-se também que a incapacidade física se podecorrelacionar negativamente com a QDVRS, contudo de forma menos expressiva. A correlaçãonegativa verificou-se entre as dimensões Funcionamento Físico e Dor Corporal do SF-36 e a escalaglobal de Bem-Estar do FACT-G, mostrando assim que níveis de QDVRS favoráveis se podem fazeracompanhar por baixos níveis de capacidade física. Através da análise qualitativa, foram identificados14 temas básicos considerados como os mais representativos e preponderantes na experiência daincapacidade física e da funcionalidade, em que destes temas se destaca o tema Descrição de sintomasfísicos incapacitantes.Assim, pode-se dizer que a incapacidade física pode interferir com a percepção que os doentesoncológicos fazem da sua QDVRS. Nesse sentido, diminuir a incapacidade fisica, nomeadamente ossintomas fisicos incapacitantes, é fundamental para promover uma melhor QDVRS nestes doentes.
The present study was conducted to explore the relationship between physical disability andHealth Related Quality of Life (HRQOL) in cancer patients. This study also pretend understand thecentral themes connected with living physical disability and functionality in that patients.In this study a convenience sample of twenty women and six men with a medical diagnosis ofCancer was collected at the Pain Clinic's IPOLFG. In accordance to the objectives of the presentresearch the following instruments were used: Functional Assessment Cancer Therapy - General,version 4 (FACT-G, v.4, Portuguese version), Medical Outcomes Study 36 - Item Short Form SF -36, version 2 (SF-36, v.2, Portuguese version), Functional Living Índex - Cancer (FLI-C, translatedand adapted specifically for this study), e Thermometer of Distress. In addition to these instruments,15 of the 26 participants were given a semi-structured interview and a Visual Analogue Scale (VAS)concerning the physical capacity . The discourse of the participants was content analised andcategorized through a number of issues associated with the experience of disability andfunctionality,.The disability in this study was assessed through the VAS for the physical capacity andthrough the dimensions of the questionaires related to physical capacity. Data was interpretedaccording to the meaning of the dimensions of these questionnaires. The data suggest that disabilityis related in a positive way with QDVRS. However, it was also suggested that the disability can becorrelated negatively with QDVRS, however not as significant. A negative correlation was foundbetween the dimensions Physical Functioning and Body Pain scales of the SF-36 and overall wellbeingof the FACT-G, showing that levels of favorable QDVRS can be accompanied by low levels ofphysical capacity, which is in contradiction with previous results that say that high values of physicalcapacity correspond to favorable QDVRS. Through qualitative analysis, 14 central themes wereidentified as the most representative and preponderant in the experience of disability andfunctionality, the most proeminent is Description disabling physical symptoms.We can say that physical disability may interfere with the cancer patients' perception of theirQDVRS. So, it seems that an effort to reduce the physical disability, including disabling physicalsymptoms, is essential to promote a better QDVRS in these patients.
The present study was conducted to explore the relationship between physical disability andHealth Related Quality of Life (HRQOL) in cancer patients. This study also pretend understand thecentral themes connected with living physical disability and functionality in that patients.In this study a convenience sample of twenty women and six men with a medical diagnosis ofCancer was collected at the Pain Clinic's IPOLFG. In accordance to the objectives of the presentresearch the following instruments were used: Functional Assessment Cancer Therapy - General,version 4 (FACT-G, v.4, Portuguese version), Medical Outcomes Study 36 - Item Short Form SF -36, version 2 (SF-36, v.2, Portuguese version), Functional Living Índex - Cancer (FLI-C, translatedand adapted specifically for this study), e Thermometer of Distress. In addition to these instruments,15 of the 26 participants were given a semi-structured interview and a Visual Analogue Scale (VAS)concerning the physical capacity . The discourse of the participants was content analised andcategorized through a number of issues associated with the experience of disability andfunctionality,.The disability in this study was assessed through the VAS for the physical capacity andthrough the dimensions of the questionaires related to physical capacity. Data was interpretedaccording to the meaning of the dimensions of these questionnaires. The data suggest that disabilityis related in a positive way with QDVRS. However, it was also suggested that the disability can becorrelated negatively with QDVRS, however not as significant. A negative correlation was foundbetween the dimensions Physical Functioning and Body Pain scales of the SF-36 and overall wellbeingof the FACT-G, showing that levels of favorable QDVRS can be accompanied by low levels ofphysical capacity, which is in contradiction with previous results that say that high values of physicalcapacity correspond to favorable QDVRS. Through qualitative analysis, 14 central themes wereidentified as the most representative and preponderant in the experience of disability andfunctionality, the most proeminent is Description disabling physical symptoms.We can say that physical disability may interfere with the cancer patients' perception of theirQDVRS. So, it seems that an effort to reduce the physical disability, including disabling physicalsymptoms, is essential to promote a better QDVRS in these patients.
Descrição
Tese de mestrado, Psicologia (Secção de Psicologia Clínica e da Saúde - Núcleo de Psicologia da Saúde e da Doença), Universidade de Lisboa, Faculdade de Psicologia e de Ciências da Educação, 2009
Palavras-chave
Doença oncológica Qualidade de vida Incapacidade física Teses de mestrado - 2009