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Authors
Abstract(s)
Adolescentes com Diabetes Tipo 1 (DM1) confrontam desafios de elevada complexidade associados à gestão da doença crónica. A investigação tem apontado a vantagem de intervenções de promoção das competências de autogestão da doença. Este trabalho teve como objetivo global desenvolver e implementar um programa de educação para a autogestão em adolescentes com DM1 (Lay LeDU DM1) durante um campo de férias, a partir do programa de educação para a autogestão para adolescentes com Spina Bífida baseado no modelo de Lorig, e analisar preliminarmente o seu impacto nos níveis de hemoglobina glicada, conhecimentos acerca da diabetes, autoeficácia relacionada com a gestão da DM1, e qualidade de vida relacionada com a saúde. Realizaram-se três estudos sequenciais, os estudos I (n=18) e II (n=32) quantitativos, descritivos com desenho “Before–after” com avaliação no primeiro dia do campo, após o campo, e seis meses depois. No estudo III (n=38), qualitativo, no final do programa foram realizados três grupos focais (participantes rapazes, participantes raparigas e Lay Leds) e foi realizada análise temática e categorial. Os principais resultados mostram que os adolescentes que participaram no Campo de férias com Programa de Educação para a Autogestão aumentaram significativamente mais as respostas corretas sobre conhecimentos acerca da diabetes do que no campo de férias, e a dimensão impacto do tratamento da qualidade de vida relacionada com a saúde foi significativamente superior no momento T2, após o campo de férias. Não se observaram diferenças na evolução em nenhuma das outras variáveis. Da análise das entrevistas de grupo focal (estudo III) os participantes consideram que foi uma experiência interessante com ênfase nos conhecimentos sobre a gestão da DM1 e partilha de experiências entre pares. Espera-se com este trabalho contribuir para o conhecimento sobre a construção de programas de campos de férias para adolescentes com DM1 e fomentar a utilização dos programas na promoção da autogestão da DM1.
Adolescents with Type 1 Diabetes (DM1) face highly complex challenges associated with managing this chronic disease. Research has highlighted the advantages of interventions which promote disease self-management skills. The primary goal is to develop and execute a self-management educational program for adolescents with DM1 (Lay LeDU DM1) during a summer camp based on Lorig's model of self-management education for adolescents with Spina Bifida. This program allows the analysis of its impact on various factors such as glycated haemoglobin levels, knowledge about diabetes, self-efficacy related to managing DM1, and health-related quality of life. Three consecutive studies were conducted. Studies I (n=18) and II (n=32) are quantitative, descriptive and with a Before-After design, i.e., evaluation on the first day of the Camp, after the Camp, and six months later. Study III (n=38) is qualitative, happens at the end of the program, and consists of three focus groups (male participants, female participants and Lay Leds) for thematic and categorical analysis. Adolescents who participated in the Summer Camp with Management Program revealed significantly more correct answers regarding knowledge about diabetes than those in the Camp; the dimension impact of the treatment on the quality of health-related quality of life was significantly higher at T2 after the Camp. No differences in evolution were observed in any of the other variables. From the analysis of the interviews with the focus group (Study III), participants acknowledged it as an interesting experience with an emphasis on learning about managing DM1 and sharing experiences among peers. This study is expected to contribute to the knowledge about summer camp programs for adolescents with DM1 and encourage the use of programs to promote DM1 self-management.
Adolescents with Type 1 Diabetes (DM1) face highly complex challenges associated with managing this chronic disease. Research has highlighted the advantages of interventions which promote disease self-management skills. The primary goal is to develop and execute a self-management educational program for adolescents with DM1 (Lay LeDU DM1) during a summer camp based on Lorig's model of self-management education for adolescents with Spina Bifida. This program allows the analysis of its impact on various factors such as glycated haemoglobin levels, knowledge about diabetes, self-efficacy related to managing DM1, and health-related quality of life. Three consecutive studies were conducted. Studies I (n=18) and II (n=32) are quantitative, descriptive and with a Before-After design, i.e., evaluation on the first day of the Camp, after the Camp, and six months later. Study III (n=38) is qualitative, happens at the end of the program, and consists of three focus groups (male participants, female participants and Lay Leds) for thematic and categorical analysis. Adolescents who participated in the Summer Camp with Management Program revealed significantly more correct answers regarding knowledge about diabetes than those in the Camp; the dimension impact of the treatment on the quality of health-related quality of life was significantly higher at T2 after the Camp. No differences in evolution were observed in any of the other variables. From the analysis of the interviews with the focus group (Study III), participants acknowledged it as an interesting experience with an emphasis on learning about managing DM1 and sharing experiences among peers. This study is expected to contribute to the knowledge about summer camp programs for adolescents with DM1 and encourage the use of programs to promote DM1 self-management.
Description
Keywords
Adolescente Diabetes Mellitus Tipo 1 Intervenção de Enfermagem Autogestão Transição Adolescent Type 1 Diabetes Mellitus Nursing Intervention Self-management Transition