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Pathways for a ‘Good Death’: Understanding End-of-Life Practices Through An Ethnographic Study in Two Portuguese Palliative Care Units

2022Artigo científico Acesso aberto
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dc.contributor.authorHilario, Ana Patricia
dc.contributor.authorAugusto, Fábio Rafael
dc.date.accessioned2020-12-14T15:45:35Z
dc.date.available2020-12-14T15:45:35Z
dc.date.issued2022
dc.description.abstractDrawing upon an ethnographic research developed in two Portuguese palliative care units, this article seeks to analyze end-of-life practices, namely how they are perceived and negotiated among the various actors involved. Over a period of ten months in these units participant observation and in-depth interviews were conducted with twenty family members of patients with a life-threatening illness and twenty health care professionals. Against this backdrop, aspects related to the concept of a ‘good death’, the management of pain and suffering and the loss of consciousness were explored. The main findings pointed to an appreciation, both by professionals and family members, of an holistic intervention that guarantees the patient's physical, psychological, social and spiritual well-being, where the relief of physical symptoms is of particular importance and palliative sedation emerges as a mechanism that allows the patient to achieve a ‘good death’ (without suffering and in a peaceful way).pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationHilário, A. P., Augusto, F. R. (2022). Pathways for a ‘Good Death’: Understanding End-of-Life Practices Through An Ethnographic Study in Two Portuguese Palliative Care Units. Sociological Research Online, 27 (2), pp. 219-235. (First Published November 26, 2020). DOI 10.1177/1360780420972724pt_PT
dc.identifier.doi10.1177/1360780420972724pt_PT
dc.identifier.issn1360-7804
dc.identifier.urihttp://hdl.handle.net/10451/45303
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherSagept_PT
dc.relationTHE BODY AND ITS SHADWS: AN EXPLORATION OF THE BODILY EXPERIENCES OF TERMINALLY ILL PATIENTS
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectethnographic researchpt_PT
dc.subjectin-depth interviewspt_PT
dc.subjectgood deathpt_PT
dc.subjectdying patientspt_PT
dc.subjectend-of-lifept_PT
dc.titlePathways for a ‘Good Death’: Understanding End-of-Life Practices Through An Ethnographic Study in Two Portuguese Palliative Care Unitspt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardTitleTHE BODY AND ITS SHADWS: AN EXPLORATION OF THE BODILY EXPERIENCES OF TERMINALLY ILL PATIENTS
oaire.awardURIinfo:eu-repo/grantAgreement/FCT//SFRH%2FBD%2F43293%2F2008/PT
oaire.citation.titleSociological Research Onlinept_PT
person.familyNameHilario
person.familyNameAugusto
person.givenNameAna Patricia
person.givenNameFábio Rafael
person.identifier.ciencia-idB713-F6B2-FB76
person.identifier.ciencia-id911F-6784-65B8
person.identifier.orcid0000-0001-7396-5127
person.identifier.orcid0000-0002-1957-2477
person.identifier.ridD-7368-2015
person.identifier.scopus-author-id56556584000
person.identifier.scopus-author-id57196299472
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication38a11b41-2bba-49c2-b527-7161fec12e9a
relation.isAuthorOfPublication1429eb3f-08dd-48d2-8048-964d7bf36a6c
relation.isAuthorOfPublication.latestForDiscovery1429eb3f-08dd-48d2-8048-964d7bf36a6c
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relation.isProjectOfPublication.latestForDiscovery3a7ec621-17a2-4ef5-bf2c-380cbadb2134

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