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Medicinas paralelas e a sua utilização em doentes com esclerose múltipla
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A Esclerose Múltipla(EM) é uma doença inflamatória crónica que afecta a substância branca do Sistema Nervoso Central. Em Portugal estima-se que existam cerca de 6000 doentes, com predomínio da forma Recidivante-Remitente(RR). Actualmente não há uma cura, e em Portugal não há estudos que avaliem o recurso destes doentes às Medicinas Paralelas(MP). Assim, o principal objectivo desta investigação é caracterizar a frequência de utilização de MP por doentes com EM. Secundariamente pretende-se caracterizar o padrão deste uso. Foi selecionada de forma consecutiva e aleatória uma amostra de 31 doentes com EM do Hospital de Santa Maria, o que corresponde a cerca de 5% do total de cerca de 650 doentes com EM da consulta de Neurologia, e efectuado um questionário de autopreenchimento. 24 doentes já ouviram falar do uso de MP na EM. Destes, 12 referem já ter utilizado pelo menos uma vez, dos quais, 4 fazem-no regularmente, e 9 conhecem alguém com EM que já tenha recorrido a MP. Quem mais recorreu a MP foram as mulheres (10 doentes), sendo que os factores sociodemográficos não influenciam significativamente a decisão do uso de MP. Os doentes ouviram falar das MP principalmente pelos amigos. A esperança de cura e o complemento à terapêutica convencional são as principais razões apontadas. A Acupunctura foi a MP mais utilizada (7 doentes). Em relação à Qualidade de Vida(QV) numa escala de 1 a 10, após a utilização de MP, os indivíduos que recorreram apresentam subida da QV (p=0,132) e uma evolução não inferior aos que não recorreram, (p=0,177). A melhoria sintomática traduziu-se na força, stress, sensibilidade e padrão de sono (+2 pontos). Estes resultados alertam para a necessidade do médico se informar para aconselhar e proteger os doentes de forma imparcial, uma vez que são escassos os estudos que demonstrem os benefícios e riscos destas terapêuticas.
Multiple Sclerosis(MS) is a chronic inflamatory disease that mainly affects the white matter of the Central Nervous System. In Portugal, there are about 6000 individuals with MS, the majority with relapsing-remiting phenotype (RRMS). Up to date, there is no cure nor studies which evaluate the Complementary and Alternative Medicine (CAM) usage by patients with MS in Portugal. Therefore, the primary goal of this study is to analyse the frequency of usage of CAM among portuguese patients with MS. Secundarily, this study aims to characterize its pattern of usage. There was a random consecutive selection of 31 patients with MS in Hospital de Santa Maria, which corresponds to about 5% of the total of 650 patients with MS in the Neurology consultation. Patients were asked to fill, anonimously, a questionaire. 24 patiens already heard about the usage of CAM in MS out of whom, 12 had already used them at least once and, of these, 4 use them regularly and 9 know someone with MS that used CAM. The patients who use CAM more frequently are women(10 patients), and sociodemographic factors do not influence the decision regarding the usage of CAM. Patients were mainly refered to CAM by friends and used CAM mainly because of hope for a cure and as a complement to conventional therapy. Acupuncture was the most frequent used CAM (7 patients). Regarding Quality of Life (QL), asseded by a quantity scale from 1 to 10, after usage of CAM, individuals which used CAM reported an increase in QL (p=0,132) and a non-inferior evolution comparing to those who didn’t use CAM (p=0,177). Symptomatic relief ocurred in strenght, stress, sensivity and sleep patthern symptoms (+2 points). These results stand for the need for doctors to update their knowledge about CAM, to better counsel and protect patients, impartialy, because few studies conclude whether there is risk or benefit by using these therapies in MS.
Multiple Sclerosis(MS) is a chronic inflamatory disease that mainly affects the white matter of the Central Nervous System. In Portugal, there are about 6000 individuals with MS, the majority with relapsing-remiting phenotype (RRMS). Up to date, there is no cure nor studies which evaluate the Complementary and Alternative Medicine (CAM) usage by patients with MS in Portugal. Therefore, the primary goal of this study is to analyse the frequency of usage of CAM among portuguese patients with MS. Secundarily, this study aims to characterize its pattern of usage. There was a random consecutive selection of 31 patients with MS in Hospital de Santa Maria, which corresponds to about 5% of the total of 650 patients with MS in the Neurology consultation. Patients were asked to fill, anonimously, a questionaire. 24 patiens already heard about the usage of CAM in MS out of whom, 12 had already used them at least once and, of these, 4 use them regularly and 9 know someone with MS that used CAM. The patients who use CAM more frequently are women(10 patients), and sociodemographic factors do not influence the decision regarding the usage of CAM. Patients were mainly refered to CAM by friends and used CAM mainly because of hope for a cure and as a complement to conventional therapy. Acupuncture was the most frequent used CAM (7 patients). Regarding Quality of Life (QL), asseded by a quantity scale from 1 to 10, after usage of CAM, individuals which used CAM reported an increase in QL (p=0,132) and a non-inferior evolution comparing to those who didn’t use CAM (p=0,177). Symptomatic relief ocurred in strenght, stress, sensivity and sleep patthern symptoms (+2 points). These results stand for the need for doctors to update their knowledge about CAM, to better counsel and protect patients, impartialy, because few studies conclude whether there is risk or benefit by using these therapies in MS.
Descrição
Trabalho Final do Curso de Mestrado Integrado em Medicina, Faculdade de Medicina, Universidade de Lisboa, 2017
Palavras-chave
Medicinas paralelas Esclerose múltipla Qualidade de vida Neurologia