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Resumo(s)
As repercussões do diagnóstico de uma doença oncológica podem implicar consequências emocionais por parte dos doentes. Perceber as preferências dos doentes na forma na forma de receber diagnósticos dessa natureza pode atenuar o impacto de uma má notícia e contribuir para o bem-estar dos doentes oncológicos. Este estudo teve como objetivos reunir evidência de estudos sobre os procedimentos recorrentes na forma de comunicar com o doente oncológico; identificar as preferências de doentes na receção do diagnóstico de doença oncológica maligna e identificar constrangimentos e oportunidades que acompanham esse processo de comunicação. Método: Pesquisa realizada em artigos publicados entre 2015 e 2021, em língua inglesa, nas bases de dados PubMed e PsycInfo, que continham experiências e preferências referidas pelos doentes baseadas em procedimentos para comunicar más notícias e medidas para avaliar as preferências dos doentes, para atenuar a perturbação psicológica, facilitar a adaptação à nova situação e promover uma atitude de esperança realística, baseadas nos resultados reportados através de inquéritos e entrevistas. Resultados: foram analisados dez artigos e constatou-se que, apesar de algumas coincidências, as preferências dos doentes variam consoante as particularidades dos indivíduos e consoante os países em que vivem: de cultura ocidental e/ou de cultura não ocidental. Nos primeiros, os doentes preferem ser informados desde o momento do diagnóstico da sua situação clínica e prognóstico. Preferem conhecer as opções de tratamento e participar nas tomadas de decisão médicas. Nos segundos, preferem desconhecer o diagnóstico na sua totalidade, sendo muitas vezes os familiares a pedir aos médicos para ocultarem a real situação clínica. Conclusão: Receber de imediato a má notícia, de forma direta e com linguagem acessível com possibilidade de escolha das opções de tratamento reúne a maioria das preferências apontadas pelos doentes. Em países do continente africano e asiático, o doente prefere não receber o diagnóstico na íntegra, sendo muitas vezes os familiares a pedir ao médico para ocultar a má notícia.
The repercussions of the diagnosis of an oncological disease can imply emotional consequences on the part of patients. Hence, knowing their preferences in the way of receiving diagnoses of this nature can mitigate the impact of bad news and contribute to the well-being of cancer patients. Thus, this study aimed to gather evidence from studies on recurrent procedures in the way of communicating with cancer patients; identify patients' preferences in receiving the diagnosis of malignant oncological disease and identify constraints and opportunities that accompany this communication process. Method: Research carried out on articles published between 2015 and 2021, in english, in the PubMed and PsycInfo databases, which contained measures to assess patients' preferences, to attenuate the psychological disorder, facilitate adaptation to the new situation and to stimulate a spirit of hope in patients, based on the results reported through surveys and interviews. Results: ten articles were analyzed, and it was found that, despite some coincidences, patients' preferences vary according to the particularities of individuals and depending on the countries in which they live: western and/or non-Western culture. In the western countries, patients prefer to be informed from the moment of diagnosis of their clinical situation and prognosis. They prefer to know the treatment options and participate in medical decision making. In the seconds, they prefer not to know the diagnosis in its entirety, and family members are often asking doctors to hide the real clinical situation. Conclusion: Receiving the bad news immediately, directly and in accessible language, with the possibility of choosing treatment options, meets most of the preferences indicated by patients. In countries on the African and Asian continents, the patient prefers not to receive the full diagnosis.
The repercussions of the diagnosis of an oncological disease can imply emotional consequences on the part of patients. Hence, knowing their preferences in the way of receiving diagnoses of this nature can mitigate the impact of bad news and contribute to the well-being of cancer patients. Thus, this study aimed to gather evidence from studies on recurrent procedures in the way of communicating with cancer patients; identify patients' preferences in receiving the diagnosis of malignant oncological disease and identify constraints and opportunities that accompany this communication process. Method: Research carried out on articles published between 2015 and 2021, in english, in the PubMed and PsycInfo databases, which contained measures to assess patients' preferences, to attenuate the psychological disorder, facilitate adaptation to the new situation and to stimulate a spirit of hope in patients, based on the results reported through surveys and interviews. Results: ten articles were analyzed, and it was found that, despite some coincidences, patients' preferences vary according to the particularities of individuals and depending on the countries in which they live: western and/or non-Western culture. In the western countries, patients prefer to be informed from the moment of diagnosis of their clinical situation and prognosis. They prefer to know the treatment options and participate in medical decision making. In the seconds, they prefer not to know the diagnosis in its entirety, and family members are often asking doctors to hide the real clinical situation. Conclusion: Receiving the bad news immediately, directly and in accessible language, with the possibility of choosing treatment options, meets most of the preferences indicated by patients. In countries on the African and Asian continents, the patient prefers not to receive the full diagnosis.
Descrição
Trabalho Final do Curso de Mestrado Integrado em Medicina, Faculdade de Medicina, Universidade de Lisboa, 2022
Palavras-chave
Comunicação Más-notícias Doentes oncológicos Preferências Relação médico-doente
