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Good practice recommendations for information provision for those involved in reproductive donation

2022Artigo científico Acesso aberto
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dc.contributor.authorKirkman-Brown, Jackson
dc.contributor.authorCalhaz-Jorge, Carlos
dc.contributor.authorDancet, Eline A F
dc.contributor.authorLundin, Kersti
dc.contributor.authorMartins, Mariana
dc.contributor.authorTilleman, Kelly
dc.contributor.authorThorn, Petra
dc.contributor.authorVermeulen, Nathalie
dc.contributor.authorFrith, Lucy
dc.date.accessioned2022-02-24T16:51:11Z
dc.date.available2022-02-24T16:51:11Z
dc.date.issued2022
dc.description© The Author(s) 2022. Published by Oxford University Press on behalf of European Society of Human Reproduction and Embryology. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.compt_PT
dc.description.abstractStudy question: What information and support should be offered to donors, intended parents and donor-conceived people, in general and in consideration of the availability of direct-to-consumer genetic testing and matching services? Summary answer: For donors, intended parents and donor-conceived offspring, recommendations are made that cover information needs and informed consent, psychosocial implications and disclosure. What is known already: Trends indicate that the use of donor-assisted conception is growing and guidance is needed to help these recipients/intended parents, the donors and offspring, navigate the rapidly changing environment in which donor-assisted conception takes place. Study design size duration: A working group (WG) collaborated on writing recommendations based, where available, on evidence collected from a literature search and expert opinion. Draft recommendations were published for stakeholder review and adapted where relevant based on the comments received. Participants/materials setting methods: Papers retrieved from PUBMED were included from 1 January 2014 up to 31 August 2020, focusing on studies published since direct-to-consumer genetic testing has become more widespread and accessible. The current paper is limited to reproductive donation performed in medically assisted reproduction (MAR) centres (and gamete banks): donation outside the medical context was not considered. Main results and the role of chance: In total, 32 recommendations were made for information provision and support to donors, 32 for intended parents and 27 for donor-conceived offspring requesting information/support. Limitations reasons for caution: The available evidence in the area of reproductive donation is limited and diverse with regards to the context and types of donation. General conclusions and recommendations are largely based on expert opinion and may need to be adapted in light of future research. Wider implications of the findings: These recommendations provide guidance to MAR centres and gamete banks on good practice in information provision and support but should also be considered by regulatory bodies and policymakers at a national and international level to guide regulatory and legislative efforts towards the protection of donors and donor-conceived offspring. Study funding/competing interests: The development of this good practice paper was funded by European Society of Human Reproduction and Embryology (ESHRE), covering expenses associated with the WG meetings, the literature searches and dissemination. The WG members did not receive any payment. The authors have no conflicts of interest to declare. Disclaimer: This document represents the views of ESHRE, which are the result of consensus between the relevant ESHRE stakeholders and where relevant based on the scientific evidence available at the time of preparation. The recommendations should be used for informational and educational purposes. They should not be interpreted as setting a standard of care, or be deemed inclusive of all proper methods of care nor exclusive of other methods of care reasonably directed to obtaining the same results. They do not replace the need for application of clinical judgement to each individual presentation, nor variations based on locality and facility type. †ESHRE pages content is not externally peer reviewed. The manuscript has been approved by the Executive Committee of ESHRE.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationHum Reprod Open. 2022 Feb 16;2022(1):hoac001pt_PT
dc.identifier.doi10.1093/hropen/hoac001pt_PT
dc.identifier.eissn2399-3529
dc.identifier.urihttp://hdl.handle.net/10451/51502
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherOxford University Presspt_PT
dc.relation.publisherversionhttps://academic.oup.com/hropenpt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/pt_PT
dc.subjectCounsellingpt_PT
dc.subjectDirect-to-consumer genetic testingpt_PT
dc.subjectDisclosurept_PT
dc.subjectDonor-conceptionpt_PT
dc.subjectGamete sharingpt_PT
dc.subjectInformationpt_PT
dc.subjectOocyte/egg donationpt_PT
dc.subjectSperm donationpt_PT
dc.titleGood practice recommendations for information provision for those involved in reproductive donationpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.issue1pt_PT
oaire.citation.titleHuman Reproduction Openpt_PT
oaire.citation.volume2022pt_PT
person.familyNameCalhaz-Jorge
person.givenNameCarlos
person.identifier.orcid0000-0003-2941-113X
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationf470376a-b961-46f5-bddc-12679067ce13
relation.isAuthorOfPublication.latestForDiscoveryf470376a-b961-46f5-bddc-12679067ce13

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