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Abstract(s)
Cuidar é um ato inerente ao ser humano, sendo este efetuado, na sua maioria, por familiares, sobretudo do sexo feminino. Assumir a prestação de cuidados de uma pessoa dependente tem implicações na vida pessoal, familiar, social, laboral, entre outros, do familiar, que se torna cuidador informal, denominado, nesta dissertação, como familiar cuidador informal.
Nos últimos anos, estes cuidados foram assumidos como direitos, tendo sido integrados no sistema de bem-estar social. Contudo, este sistema nem sempre responde aos inputs, isto é, às necessidades e problemas que estes cuidadores enfrentam. Esta situação é complexa em todas as áreas dos cuidados, especialmente no que diz respeito às pessoas que sofrem de traumatismo crânio-encefálico. Esta lesão é considerada um problema de saúde pública por, mundialmente, se constituir como uma das principais causas de morte e incapacidade (cognitiva, física, emocional e comportamental) a longo prazo.
No sentido de aferir as dificuldades, alterações e estratégias na adaptação dos familiares cuidadores informais ao papel de cuidador informal e entender como as respostas sociais existentes em Portugal respondem a esta realidade, desenvolveu-se um estudo qualitativo a familiares cuidadores informais de pessoas com traumatismo crânio-encefálico. Foram realizadas 10 entrevistas a estes familiares que fazem parte de uma associação que defende os interesses e apoia estas famílias e pessoas com TCE.
Os resultados demonstram que os familiares cuidadores informais enfrentam várias dificuldades decorrentes da prestação de cuidados, conjugadas com a falta de adequação das respostas sociais existentes em Portugal para as pessoas com TCE e a falta de proteção social para os familiares cuidadores informais.
Caring is an inherent act to the human being, which is carried out mostly by family members, especially females. Taking care of a dependent person has implications on the personal, family, social, work life, among others, of the family member, who becomes an informal caregiver, called, in this dissertation, an informal family caregiver. In recent years, these cares have been assumed as rights, having been integrated into the social welfare system. However, this system does not always respond to inputs, that is, to the needs and problems that these caregivers face. This situation is complex in all areas of care, especially regarding people suffering from traumatic brain injury. This injury is considered a public health problem worldwide, as it constitutes one of the main causes of death and disability (cognitive, physical, emotional and behavioral) in the long term. In order to assess the difficulties, changes and strategies in the adaptation of informal caregivers to the role of informal caregiving and to understand how the existing social responses in Portugal answer to this reality, a qualitative study was developed with informal caregivers of people with TBI. Therefore, 10 interviews were conducted with these family members who are part of an association that defends the interests and supports these families and people with TBI. The results show that informal family caregivers face several difficulties arising from the provision of care, combined with the lack of adequacy of existing social responses in Portugal for people with TBI and the lack of social protection for informal family caregivers.
Caring is an inherent act to the human being, which is carried out mostly by family members, especially females. Taking care of a dependent person has implications on the personal, family, social, work life, among others, of the family member, who becomes an informal caregiver, called, in this dissertation, an informal family caregiver. In recent years, these cares have been assumed as rights, having been integrated into the social welfare system. However, this system does not always respond to inputs, that is, to the needs and problems that these caregivers face. This situation is complex in all areas of care, especially regarding people suffering from traumatic brain injury. This injury is considered a public health problem worldwide, as it constitutes one of the main causes of death and disability (cognitive, physical, emotional and behavioral) in the long term. In order to assess the difficulties, changes and strategies in the adaptation of informal caregivers to the role of informal caregiving and to understand how the existing social responses in Portugal answer to this reality, a qualitative study was developed with informal caregivers of people with TBI. Therefore, 10 interviews were conducted with these family members who are part of an association that defends the interests and supports these families and people with TBI. The results show that informal family caregivers face several difficulties arising from the provision of care, combined with the lack of adequacy of existing social responses in Portugal for people with TBI and the lack of social protection for informal family caregivers.
Description
Dissertação para obtenção de grau de Mestre em Política Social
Keywords
Prestação de cuidados; Familiares cuidadores informais; Traumatismo crânio-encefálico; Política Social