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Pain by proxy: an ethnographic study on the relational co-construction of the agency of young children in healthcare encounters

2025Artigo científico Acesso restrito
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dc.contributor.authorLermytte, Esther
dc.contributor.authorScavarda, Alice
dc.contributor.authorHilário, Ana Patrícia
dc.contributor.authorGariglio, Luigi
dc.contributor.authorMendonça, Joana
dc.contributor.authorCeuterick, Melissa
dc.date.accessioned2025-07-21T10:52:29Z
dc.date.available2025-07-21T10:52:29Z
dc.date.issued2025
dc.description.abstractAccess to pain management is a human right. Nevertheless, research consistently reports that children’s pain is under-recognised and under-treated compared to that of adults. Additionally, younger children are less likely to receive treatment for their pain. The significance of early-life healthcare experiences is often underestimated due to constructions of young children as passive rather than active agents in healthcare. This study addresses this issue by examining how children’s agency is co-constructed within the triad of children, caregivers, and healthcare professionals during childhood vaccination consultations. Field notes were collected describing vaccination consultations involving children aged two months to seven years, with an overrepresentation of children under the age of two due to the study’s focus. Ethnographic observations (~275.5 h) were held in Belgium, Italy, and Portugal, due to their diversity in healthcare system characteristics, vaccination policy, and coverage. Data were analysed using template analysis, a specific type of thematic analysis. Findings illustrate that children inherently possess agency, which can be hindered or facilitated by caregivers and healthcare professionals in the healthcare setting. Although clinical guidelines on pain mitigation for paediatric vaccinations exist, the findings show that these are not consistently applied in practice. Providing a framework for understanding the variability in paediatric pain mitigation, we highlight the socio-cultural conditions by which young children are either socialised into the patient role, or have their status as patients undermined. In pursuit of quality healthcare and pain mitigation for children during vaccination consultations, it is necessary that they are considered and treated as active, embodied healthcare agents.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationLermytte, E., Scavarda, A., Hilário, A. P., Gariglio, L., Mendonça, J., Ceuterick, M. (2025). Pain by proxy: an ethnographic study on the relational co-construction of the agency of young children in healthcare encounters. Social Science & Medicine, Vol. 373, Art. 118045, pp. 1-9. DOI: 10.1016/j.socscimed.2025.118045pt_PT
dc.identifier.doi10.1016/j.socscimed.2025.118045pt_PT
dc.identifier.issn0277-9536
dc.identifier.urihttp://hdl.handle.net/10400.5/102271
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherElsevierpt_PT
dc.relationAddressing vaccine hesitancy in Europe
dc.relation.publisherversionhttps://www.sciencedirect.com/science/article/pii/S0277953625003752pt_PT
dc.subjectChildrenpt_PT
dc.subjectAgencypt_PT
dc.subjectPainpt_PT
dc.subjectHealthcare encounterpt_PT
dc.subjectEthnographypt_PT
dc.subjectChildhood vaccinationpt_PT
dc.titlePain by proxy: an ethnographic study on the relational co-construction of the agency of young children in healthcare encounterspt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardNumber965280
oaire.awardTitleAddressing vaccine hesitancy in Europe
oaire.awardURIinfo:eu-repo/grantAgreement/EC/H2020/965280/EU
oaire.citation.endPage9pt_PT
oaire.citation.startPage1pt_PT
oaire.citation.titleSocial Science & Medicinept_PT
oaire.citation.volume373pt_PT
oaire.fundingStreamH2020
person.familyNameSimão Mendonça
person.givenNameJoana Maria
person.identifier.ciencia-id401C-0F97-5EA8
person.identifier.orcid0000-0001-7292-5836
project.funder.identifierhttp://doi.org/10.13039/501100008530
project.funder.nameEuropean Commission
rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationa60a4ec2-4bd7-491d-833b-dbc0b3f8fe47
relation.isAuthorOfPublication.latestForDiscoverya60a4ec2-4bd7-491d-833b-dbc0b3f8fe47
relation.isProjectOfPublicationfe563387-92a4-4dc7-91c9-37e7274372df
relation.isProjectOfPublication.latestForDiscoveryfe563387-92a4-4dc7-91c9-37e7274372df

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