Publicação
“Not storing the samples it’s certainly not a good service for patients”: constructing the biobank as a health place
| dc.contributor.author | Riso, Brígida | |
| dc.date.accessioned | 2023-07-25T13:34:14Z | |
| dc.date.available | 2023-07-25T13:34:14Z | |
| dc.date.issued | 2022 | |
| dc.description | © 2022 by the author. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). | pt_PT |
| dc.description.abstract | Abstract: Biobanks have been established from the beginning of the millennium as relevant infrastructures to support biomedical research. These repositories have also transformed the paradigm of collecting and storing samples and associated clinical data, moving these practices from the healthcare services and research laboratories to dedicated services. In Portugal, the establishment of biobanks is happening in the absence of a specific legal framework, turning it difficult to fully understand the scope of their action. This ethnographic research explored how establishing a biobank challenges the dynamics between healthcare and biomedical research. The ethnography intended to follow the path of biological samples from the hospital, where they were collected, to the biobank in a research institute, where they were stored. Findings suggest that although the nature of the biobank’s technical work seemed to inscribe it as a research-oriented setting, the biobank’s daily work was performed through symbolic action in the logic of care. Biobank staff constantly recalled the human nature of the samples, and they built complex illness narratives of each sample, promoting a connection with the absent donor. These practices were crucial to constructing the biobank as a health place, one that was designed to be life-saving in the near future. | pt_PT |
| dc.description.sponsorship | This research was funded by Fundação para a Ciência e a Tecnologia, grant number SFRH/BD/100779/2014. Part of this manuscript was written during a residency in Fondation Brocher, supported by this institution. The author Brígida Riso is currently supported by European Union’s Horizon 2020 under grant agreement no 952377, project ERA Chair iSTARS (Informatics and Statistical Tools for Advancement of Research Success). | pt_PT |
| dc.description.version | info:eu-repo/semantics/publishedVersion | pt_PT |
| dc.identifier.citation | Societies, 12(4), 113 | pt_PT |
| dc.identifier.doi | 10.3390/soc12040113 | pt_PT |
| dc.identifier.eissn | 2075-4698 | |
| dc.identifier.uri | http://hdl.handle.net/10451/58750 | |
| dc.language.iso | eng | pt_PT |
| dc.peerreviewed | yes | pt_PT |
| dc.publisher | MDPI | pt_PT |
| dc.relation | Biobancos e bio-objetos humanos: dinâmicas sociais no contexto de saúde português | |
| dc.relation | Informatics and Statistics for Advancement of Research Success | |
| dc.relation.publisherversion | https://www.mdpi.com/journal/societies | pt_PT |
| dc.rights.uri | http://creativecommons.org/licenses/by/4.0/ | pt_PT |
| dc.subject | Biobank | pt_PT |
| dc.subject | Health | pt_PT |
| dc.subject | Human biological samples; | pt_PT |
| dc.subject | Biomedical research | pt_PT |
| dc.subject | Ethnography | pt_PT |
| dc.subject | Caring practices | pt_PT |
| dc.subject | Illness narratives | pt_PT |
| dc.subject | Portugal (study context) | pt_PT |
| dc.title | “Not storing the samples it’s certainly not a good service for patients”: constructing the biobank as a health place | pt_PT |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| oaire.awardNumber | SFRH/BD/100779/2014 | |
| oaire.awardNumber | 952377 | |
| oaire.awardTitle | Biobancos e bio-objetos humanos: dinâmicas sociais no contexto de saúde português | |
| oaire.awardTitle | Informatics and Statistics for Advancement of Research Success | |
| oaire.awardURI | info:eu-repo/grantAgreement/FCT//SFRH%2FBD%2F100779%2F2014/PT | |
| oaire.awardURI | info:eu-repo/grantAgreement/EC/H2020/952377/EU | |
| oaire.citation.issue | 4 | pt_PT |
| oaire.citation.title | Societies | pt_PT |
| oaire.citation.volume | 12 | pt_PT |
| oaire.fundingStream | H2020 | |
| person.familyName | Riso | |
| person.givenName | Brígida | |
| person.identifier | 7XSoldYAAAAJ | |
| person.identifier.ciencia-id | EE12-4539-BE7E | |
| person.identifier.orcid | 0000-0001-5928-8895 | |
| person.identifier.scopus-author-id | 57195419603 | |
| project.funder.identifier | http://doi.org/10.13039/501100001871 | |
| project.funder.identifier | http://doi.org/10.13039/501100008530 | |
| project.funder.name | Fundação para a Ciência e a Tecnologia | |
| project.funder.name | European Commission | |
| rcaap.rights | openAccess | pt_PT |
| rcaap.type | article | pt_PT |
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