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Construção de manual para gestão do quotidiano de pessoas com Alzheimer: utilidade das fontes literárias
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A Medicina Narrativa e as Humanidades Médicas têm, cada vez mais, ganho um papel de extrema importância no que ao panorama das relações estabelecidas entre doentes e profissionais de saúde diz respeito. Ainda assim, a narrativa que apresenta o doente é muitas vezes desvalorizada aquando da tomada de decisões, sendo os doentes apenas vistos com base na sua doença e não como seres humanos que devem ser ouvidos e incluídos para que, deste modo, se estabeleçam relações estáveis e de confiança entre os mesmos e os profissionais de saúde. No livro Somebody That I Used To Know Wendy Mitchell, que foi diagnosticada com demência precoce, retrata as suas memórias que reportam a estádios iniciais e intermédios da doença que incluem as dificuldades que enfrentou e as adaptações que teve que enfrentar depois do diagnóstico bem como a relação que estabeleceu com vários profissionais de saúde que, por vezes, se revelaram desafiantes por não se sentir vista e ouvida para além da sua doença. Sendo que uma base de apoio sólida por parte dos profissionais de saúde é crucial para uma manutenção mais prolongada da qualidade de vida em ambiente autónomo, a metodologia desta dissertação baseia-se na análise de estudos realizados em várias Universidades onde os participantes foram munidos de ferramentas chave das Humanidades Médicas e Medicina Narrativa, tais como a leitura atenta e a escuta ativa, podemos observar que, no geral, estas ferramentas conduziram ao desenvolvimento de um renovado sentido de consciência, tanto a nível da importância da decisão partilhada, como da visão do doente. Podemos concluir que a formação dos vários intervenientes na área da saúde não deve contemplar apenas temáticas do foro científico, mas também componentes em que os estudantes possam praticar o tipo de comunicação e abordagem que deverão ter perante os doentes. Sendo os farmacêuticos comunitários uma ponte entre doente e Serviço Nacional de Saúde, é importante que estejam munidos de informações práticas que possam indicar aos doentes e aos seus cuidadores para que o seu quotidiano se revele mais fácil, nomeadamente que inclua todos os aspetos importantes para a manutenção do bem-estar do doente como é, por exemplo, a toma da medicação.
Narrative medicine and the medical humanities are increasingly gaining an extremely important role in the context of the established relationship between patients and healthcare professionals. Still, the narrative that the patient presents is often overlooked in decision-making and patients are only seen based on their illness and not as human beings who should be heard and included in order to establish stable and reliable relationships. In the book Somebody That I Used To Know, Wendy Mitchell, who has been diagnosed with early dementia, portrays her memories of early and intermediate stages of the disease, including the difficulties and the adaptations she had to face after the diagnosis as well as the relationships she developed with several healthcare professionals, which sometimes proved to be challenging because she didn’t feel seen and heard beyond her illness. Since a solid support base from healthcare professionals is crucial for a longer maintenance of quality of life in an autonomous environment, the methodology of this dissertation is based on the analysis of studies conducted in several Universities where participants were equipped with key tools of Medical Humanities and Narrative Medicine, such as close reading and active listening, we can see that in general it has led to the development of a renewed sense of awareness, both in terms of the importance of the shared decision-making process and of the patient's vision. We can conclude that the training of the various healthcare actors should not only include scientific topics, but also courses in which students can practice the kind of communication and approach they should have towards patients. Considering that community pharmacists are a bridge between patients and the National Health System, it is important that they have access to practical information that they can provide to patients and their caregivers so that their daily life is easier, including included all aspects that are important for maintaining the patient’s well-being, such as taking the right medication.
Narrative medicine and the medical humanities are increasingly gaining an extremely important role in the context of the established relationship between patients and healthcare professionals. Still, the narrative that the patient presents is often overlooked in decision-making and patients are only seen based on their illness and not as human beings who should be heard and included in order to establish stable and reliable relationships. In the book Somebody That I Used To Know, Wendy Mitchell, who has been diagnosed with early dementia, portrays her memories of early and intermediate stages of the disease, including the difficulties and the adaptations she had to face after the diagnosis as well as the relationships she developed with several healthcare professionals, which sometimes proved to be challenging because she didn’t feel seen and heard beyond her illness. Since a solid support base from healthcare professionals is crucial for a longer maintenance of quality of life in an autonomous environment, the methodology of this dissertation is based on the analysis of studies conducted in several Universities where participants were equipped with key tools of Medical Humanities and Narrative Medicine, such as close reading and active listening, we can see that in general it has led to the development of a renewed sense of awareness, both in terms of the importance of the shared decision-making process and of the patient's vision. We can conclude that the training of the various healthcare actors should not only include scientific topics, but also courses in which students can practice the kind of communication and approach they should have towards patients. Considering that community pharmacists are a bridge between patients and the National Health System, it is important that they have access to practical information that they can provide to patients and their caregivers so that their daily life is easier, including included all aspects that are important for maintaining the patient’s well-being, such as taking the right medication.
Descrição
Trabalho Final de Mestrado Integrado, Ciências Farmacêuticas, Universidade de Lisboa, Faculdade de Farmácia, 2019
Palavras-chave
Medicina Narrativa Humanidades Médicas Farmacêutico Comunitário Mestrado Integrado - 2019