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Publicação
Os novos desafios e horizontes dos cuidados paliativos nas doenças neurodegenerativas
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Orientador(es)
Resumo(s)
Introdução
Os cuidados paliativos constituem uma abordagem para o acompanhamento dos doentes que enfrentam doenças crónicas e dos seus cuidadores. Esta abordagem concentra-se no alívio do sofrimento físico, psicossocial e/ou espiritual.
Métodos
Revisão da literatura sobre o estado da arte dos cuidados paliativos nas doenças neurodegenerativas, concretamente sobre o papel do neurologista, do paliativista e do cuidador no processo da doença crónica.
Foram selecionados 13 artigos, publicados nos anos 2014-2018, após pesquisa na Pubmed© com base na especificação seguinte e com as palavras MESH: “neurodegenerative diseases” and “neurology” and [“palliative care” or “palliative medicine” or “end of life care” or “terminal care”].
Conclusão
Os neurologistas cuidam de pessoas com doenças crónicas progressivas, frequentemente incapacitantes, que muitas vezes encurtam a vida. Por conseguinte, é importante que estes especialistas valorizem os princípios da medicina paliativa e os apliquem na sua prática clínica.
Palliative care represent an approach for monitoring patients who suffer from chronic diseases as well as their caregivers. This approach focuses on the relief of physical, psychosocial and/or spiritual suffering. Methods Literature review on the state of the art of palliative care in neurodegenerative diseases, namely on the role of neurologists, palliative doctors and caregivers on the chronical disease process. Thirteen articles, published between 2013 and 2018, were selected, after a Pubmed© search based on MESH words, as such: “neurodegenerative diseases” and “neurology” and [“palliative care” or “palliative medicine” or “end of life care” or “terminal care”]. Conclusion Neurologists take care of patients with progressive chronic diseases, often disabling, that frequently shorten their lives. Therefore, it is important that they value the principles of palliative care and apply them in their clinical practice.
Palliative care represent an approach for monitoring patients who suffer from chronic diseases as well as their caregivers. This approach focuses on the relief of physical, psychosocial and/or spiritual suffering. Methods Literature review on the state of the art of palliative care in neurodegenerative diseases, namely on the role of neurologists, palliative doctors and caregivers on the chronical disease process. Thirteen articles, published between 2013 and 2018, were selected, after a Pubmed© search based on MESH words, as such: “neurodegenerative diseases” and “neurology” and [“palliative care” or “palliative medicine” or “end of life care” or “terminal care”]. Conclusion Neurologists take care of patients with progressive chronic diseases, often disabling, that frequently shorten their lives. Therefore, it is important that they value the principles of palliative care and apply them in their clinical practice.
Descrição
Trabalho Final do Curso de Mestrado Integrado em Medicina, Faculdade de Medicina, Universidade de Lisboa, 2018
Palavras-chave
Doenças neurodegenerativas Cuidados paliativos Cuidados de fim de vida