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“Please send me the link for tomorrow, María” human‐rights based participatory research with people with learning disabilities via Zoom
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Orientador(es)
Resumo(s)
Background: This paper describes the experience of conducting a co‐researched
project with people with learning disabilities in Madrid, Spain, during the COVID
pandemic and lockdown. I discuss the advantages and limitations of working online
and challenges encountered while coordinating and facilitating the research.
Methods: Our research project was on the impact of COVID on the lives of people
with learning disabilities, which the eight co‐researchers chose. As part of my PhD, I
offered my services as researcher to work together with persons with learning
disabilities. Eight people took up my offer. We worked together from January 2021
to March 2022 virtually and I recorded this experience. I have written the paper, but
as part of my co‐researcher agreement, I have shared my reflections and work with
my co‐researchers, and we have co‐written a section to share our findings.
Findings: In this paper, I discuss the advantages and limitations of working online,
challenges I encountered while coordinating and facilitating the research and the
work together. Remote work enabled the group to work on a biweekly basis and
with members from different parts of Madrid. It saved people time and effort getting
around town, yet we had to introduce express times and spaces to socialise and
create a working relationship that is less natural than during in‐person interactions
and breaks. During our fieldwork, we found that the pandemic had spurred the
access to digital devices and programmes, but people may still be reliant on their
environment, carers or supporters to facilitate it. I included a section written with my
co‐researchers, in which we reflect together on the experience of working online
and how we reached out to their peers during our fieldwork. We identified
limitations due to our online research methodology such as lack of owning a digital
device, the difficulties having access to a private space from which to connect online
and the joy of meeting other people to exchange experiences.
Conclusion: Human rights based participatory research can be done online. There
are different ways of overcoming barriers to participation. However, there are people with no access to the internet or without digital skills that are being excluded
and we must ensure that we reach out to them as well.
Descrição
Palavras-chave
CRPD, learning disabilities, online, pandemic, participatory research, Spain, Zoom
Contexto Educativo
Citação
de Castro, M. G.‐C., Palazuelos, A., Corona, A., Sánchez, Á., Alises, G., Sancho, M., Cauja, P., & Sanz, V. (2023). “Please send me the link for tomorrow, María” human‐rights based participatory research with people with learning disabilities via Zoom. British Journal of Learning Disabilities, 51, 260–268. https://doi.org/10.1111/bld.12511
Editora
WILEY