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Do clinical and psychosocial factors affect health-related quality of life in adolescents with chronic diseases?

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dc.contributor.authorSantos, Teresa
dc.contributor.authorMatos, MG
dc.contributor.authorMarques, Adilson
dc.contributor.authorSimões, Celeste
dc.contributor.authorLeal, Isabel
dc.contributor.authorMachado, Maria do Céu
dc.date.accessioned2019-01-10T16:44:52Z
dc.date.available2019-01-10T16:44:52Z
dc.date.issued2017
dc.descriptionCopyright © 2006 - 2018 The Canadian Center of Science and Education. All Rights Reserved. Copyright for this article is retained by the author(s), with first publication rights granted to the journal. This is an open-access article distributed under the terms and conditions of the Creative Commons Attribution license (http://creativecommons.org/licenses/by/4.0/).pt_PT
dc.description.abstractLiving with a chronic disease in adolescence can have an impact on the perception of Health-related Quality of Life (HRQoL). Facing the increasing relevance of psychosocial dimensions and also considering the interaction with clinical variables, this study aimed to measure the impact of clinical and psychosocial factors (separated and combined) on adolescent’s reported HRQoL. A cross-sectional study was conducted in a clinical population of 135 adolescents with chronic diseases (n=70 boys), average age: 14±1.5 years old. Through a self-reported questionnaire, HRQoL (KIDSCREEN-10), socio-demographic, clinical variables (diagnostic; time of diagnosis; self-perceived pain; disease severity proxy; disease-related medication intake/use of special equipment), and psychosocial variables (psychosomatic health; resilience; self-regulation; social support) were assessed. Separately, clinical and psychosocial variables showed a significant impact in HRQoL, 27.9% and 62.4%, respectively. Once combined, the previously identified variables had a significant impact (64.2%), but a different contribution from clinical and psychosocial variables was revealed: when first entering the clinical variables (model 1) the variance only reaches 30%, and much more from psychosocial variables seems to explain the total (64.2%); inversely, when first integrating psychosocial variables (model 2), the clinical ones added a small significance to the model (0.6%). The present study underlined the association of clinical (“disease-related”) and psychosocial (“non-disease-related”) factors on HRQoL. Furthermore, it reinforced the need to focus more on psychosocial dimensions, highlighted the potential role of psychosomatic health, resilience, self-regulation and social support. It can be suggested that the identification of impaired psychosocial domains may help professionals to better plan, and achieve effective interventions of psychosocial care.pt_PT
dc.description.sponsorshipSantos, T. was supported by a PhD grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: reference SFRH/BD/82066/2011). The William James Center for Research, ISPA - Instituto Universitário is supported by a grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: UID/PSI/04810/2013). The present study is grateful to all youngsters and parents who participated in this project, also to the health care professionals who collaborated, as well as to the Pediatrics Department of Hospital Santa Maria, CAML (Lisbon Academic Medical Center) for their assistance in this investigation. The authors are also grateful to Prof. Paula Ravasco, MD, PhD (University Hospital of Santa Maria, Portugal) for her assistance in proof-reading and revising the document.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationGlobal Journal of Health Science, 10(1), 60-75pt_PT
dc.identifier.doi10.5539/gjhs.v10n1p60pt_PT
dc.identifier.issn1916-9736
dc.identifier.urihttp://hdl.handle.net/10451/36348
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherCanadian Center of Science and Educationpt_PT
dc.relationQUALIDADE DE VIDA, PERCEPÇÃO DE SAÚDE, RESILIÊNCIA, AUTO-REGULAÇÃO E SUPORTE SOCIAL NOS ADOLESCENTES PORTUGUESES COM DOENÇA CRÓNICA
dc.relation.publisherversionhttp://www.ccsenet.org/journal/index.php/gjhs/index/pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectAdolescentspt_PT
dc.subjectChronic diseasept_PT
dc.subjectClinical variablespt_PT
dc.subjectPsychosocial variablespt_PT
dc.subjectHealth-related quality of lifept_PT
dc.titleDo clinical and psychosocial factors affect health-related quality of life in adolescents with chronic diseases?pt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardTitleQUALIDADE DE VIDA, PERCEPÇÃO DE SAÚDE, RESILIÊNCIA, AUTO-REGULAÇÃO E SUPORTE SOCIAL NOS ADOLESCENTES PORTUGUESES COM DOENÇA CRÓNICA
oaire.awardURIinfo:eu-repo/grantAgreement/FCT//SFRH%2FBD%2F82066%2F2011/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/5876/UID%2FPSI%2F04810%2F2013/PT
oaire.citation.issue1pt_PT
oaire.citation.startPage60pt_PT
oaire.citation.titleGlobal Journal of Health Sciencept_PT
oaire.citation.volume10pt_PT
oaire.fundingStream5876
person.familyNameSantos
person.familyNameGaspar de Matos
person.familyNameMarques
person.familyNameSimões
person.givenNameTeresa
person.givenNameMargarida
person.givenNameAdilson
person.givenNameCeleste
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person.identifier.ciencia-idC319-629F-67E9
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person.identifier.orcid0000-0001-9947-6022
person.identifier.orcid0000-0003-2114-2350
person.identifier.orcid0000-0001-9850-7771
person.identifier.orcid0000-0003-0229-1422
person.identifier.ridJ-6790-2012
person.identifier.ridK-4529-2014
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person.identifier.scopus-author-id24477625800
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person.identifier.scopus-author-id55082567000
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project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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