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(Health-related) quality of life and psychosocial factors in adolescents with chronic disease: a systematic literature review

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dc.contributor.authorSantos, Teresa
dc.contributor.authorMatos, MG
dc.contributor.authorSimões, Celeste
dc.contributor.authorLeal, Isabel
dc.contributor.authorMachado, Maria do Céu
dc.date.accessioned2019-01-15T15:38:43Z
dc.date.available2019-01-15T15:38:43Z
dc.date.issued2017
dc.description© 2017 Walter de Gruyter GmbH, Berlin / Boston.pt_PT
dc.description.abstractBackground: Research on living with a chronic disease (CD) in adolescence is increasing. However, studies on the relevance of psychosocial factors are still needed. The present review, focuses on the impact of living with a CD in adolescence on on quality of life (QoL), health-related quality of life (HRQoL) and psychosocial factors. Methods: A literature review of articles identified through PubMed, PsycINFO and PsycARTICLES (these last two ones comprise the Ebsco Host platform) and original peer-reviewed research papers, published between 2010 and 2015, with no restrictions regarding the format/source of interventions, randomized controlled trials (RCTs) or types of comparisons were included. Results: Eighteen papers met the inclusion criteria and contradictory results were found: the majority showed a significantly higher risk of impairment on QoL/HRQoL and psychosocial factors, whereas others reported a significantly lower risk of impairment (highlighting possible protective factors), or no significant differences. Heterogeneity in the assessment procedures and substantial difficulties in considering adolescence as a single and independent age group, were also noted. Conclusion: The higher risk of impairment and the heterogeneity observed between cohorts, reinforce the need to work towards consensual procedures, which allow for more accurate comparisons among studies. Additionally, it conveys the challenge to find more effective interventions. Furthermore, it is highly suggested to routinely assess HRQoL/psychosocial factors within an individualized framework, to considerer adolescents as a single/independent group, to emphasize potential protective factors, and, to increase youth’s participation in their own adaptation process and in health promotion in general. These are possible future directions that could enable multidisciplinary responses to improve HRQoL and psychosocial care in adolescents with a CD.pt_PT
dc.description.sponsorshipT. Santos was supported by a PhD grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: reference SFRH/BD/82066/2011) and is supported by a Pos Doc Grant from the Portuguese Foundation for Science and Technology (FCT) and the William James Center for Research, ISPA - Instituto Universitário (Grant Number: reference WJCR_3BPD_001_2017). The William James Center for Research, ISPA - Instituto Universitário is supported by a grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: UID/PSI/04810/2013).pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationInt J Adolesc Med Health. 2017 Nov 23pt_PT
dc.identifier.doi10.1515/ijamh-2017-0037pt_PT
dc.identifier.issn2191-0278
dc.identifier.urihttp://hdl.handle.net/10451/36425
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherDe Gruyterpt_PT
dc.relationWJCR_3BPD_001_2017pt_PT
dc.relationQUALIDADE DE VIDA, PERCEPÇÃO DE SAÚDE, RESILIÊNCIA, AUTO-REGULAÇÃO E SUPORTE SOCIAL NOS ADOLESCENTES PORTUGUESES COM DOENÇA CRÓNICA
dc.relation.publisherversionhttps://www.degruyter.com/view/j/ijamhpt_PT
dc.subjectAdolescentspt_PT
dc.subjectChronic diseasept_PT
dc.subjectQuality of lifept_PT
dc.subjectHealth-related quality of lifept_PT
dc.subjectPsychosocial factorspt_PT
dc.title(Health-related) quality of life and psychosocial factors in adolescents with chronic disease: a systematic literature reviewpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardNumberSFRH/BD/82066/2011
oaire.awardNumberUID/PSI/04810/2013
oaire.awardTitleQUALIDADE DE VIDA, PERCEPÇÃO DE SAÚDE, RESILIÊNCIA, AUTO-REGULAÇÃO E SUPORTE SOCIAL NOS ADOLESCENTES PORTUGUESES COM DOENÇA CRÓNICA
oaire.awardURIinfo:eu-repo/grantAgreement/FCT//SFRH%2FBD%2F82066%2F2011/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/5876/UID%2FPSI%2F04810%2F2013/PT
oaire.citation.titleInternational Journal of Adolescent Medicine and Healthpt_PT
oaire.fundingStream5876
person.familyNameGaspar de Matos
person.familyNameSimões
person.givenNameMargarida
person.givenNameCeleste
person.identifierH-3824-2012
person.identifier1925284
person.identifier.ciencia-idC319-629F-67E9
person.identifier.ciencia-id4A14-1A1B-7FF6
person.identifier.orcid0000-0003-2114-2350
person.identifier.orcid0000-0003-0229-1422
person.identifier.ridI-6444-2012
person.identifier.scopus-author-id15076750500
person.identifier.scopus-author-id24071990400
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
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relation.isAuthorOfPublication3fb5c8c9-a251-4aa8-add4-1326fe0f45f2
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