A carregar...
Projeto de investigação
QUALIDADE DE VIDA, PERCEPÇÃO DE SAÚDE, RESILIÊNCIA, AUTO-REGULAÇÃO E SUPORTE SOCIAL NOS ADOLESCENTES PORTUGUESES COM DOENÇA CRÓNICA
Financiador
Autores
Publicações
Do clinical and psychosocial factors affect health-related quality of life in adolescents with chronic diseases?
Publication . Santos, Teresa; Matos, MG; Marques, Adilson; Simões, Celeste; Leal, Isabel; Machado, Maria do Céu
Living with a chronic disease in adolescence can have an impact on the perception of Health-related Quality of
Life (HRQoL). Facing the increasing relevance of psychosocial dimensions and also considering the interaction
with clinical variables, this study aimed to measure the impact of clinical and psychosocial factors (separated and combined) on adolescent’s reported HRQoL. A cross-sectional study was conducted in a clinical population of 135 adolescents with chronic diseases (n=70 boys), average age: 14±1.5 years old. Through a self-reported questionnaire, HRQoL (KIDSCREEN-10), socio-demographic, clinical variables (diagnostic; time of diagnosis; self-perceived pain; disease severity proxy; disease-related medication intake/use of special equipment), and psychosocial variables (psychosomatic health; resilience; self-regulation; social support) were assessed. Separately, clinical and psychosocial variables showed a significant impact in HRQoL, 27.9% and 62.4%, respectively. Once combined, the previously identified variables had a significant impact (64.2%), but a different contribution from clinical and psychosocial variables was revealed: when first entering the clinical variables (model 1) the variance only reaches 30%, and much more from psychosocial variables seems to explain the total (64.2%); inversely, when first integrating psychosocial variables (model 2), the clinical ones added a small significance to the model (0.6%). The present study underlined the association of clinical (“disease-related”) and psychosocial (“non-disease-related”) factors on HRQoL. Furthermore, it reinforced the need to focus more on psychosocial dimensions, highlighted the potential role of psychosomatic health, resilience, self-regulation and social support. It can be suggested that the identification of impaired psychosocial domains may help professionals to better plan, and achieve effective interventions of psychosocial care.
Psychosocial profile in portuguese adolescents with chronic disease attending an outpatient department in a hospital setting
Publication . Santos, Teresa; Matos, MG; Marques, Adilson; Simões, Celeste; Leal, Isabel; Machado, Maria do Céu
Living with a chronic disease (CD) in adolescence involves new multifaceted challenges. This study aims to conduct a psychosocial characterization of a group of adolescents with chronic diseases in a hospital setting and to compare such dimensions for the total group and for different diseases. A cross-sectional study included 135 adolescents with chronic diseases (51.9% boys; 48.1% girls), having an average age of 14±1.5 years (SD=1.5) and attending a paediatric outpatient department in a hospital setting. Statistically significant differences were found among the different chronic diseases for the variables self-regulation (adolescents with diabetes had significantly higher competencies) and multiple psychosomatic symptoms (adolescents with neurologic diseases reported significantly more complaints). Boys presented both better health-related quality of life and psychosomatic health when compared to girls. No statistically significant differences were observed for health-related quality of life, psychosomatic health, resilience, and social support. These findings bring important suggestions especially while planning interventions, which must take into account the promotion of a healthy psychosocial development, through an inclusive perspective (covering different chronic diseases), that take into consideration specific and gendered approaches. Such suggestions might help healthcare professionals to better plan interventions in order to increase their effectiveness.
Expérimentation du cannabis chez des élèves d’ULIS avec déficience cognitive
Publication . Pacoricona Alfaro, Dibia Liz; Santos, Teresa; Matos, MG; Ehlinger, Virginie; Spilka, Stanislas; Sentenac, Mariane; Godeau, Emmanuelle
Globally, current inclusive education policies allow students with cognitive disorders to participate in community/school life, however, such an increasing exposition might raise their level of detrimental behaviours as well, namely substance use. This study aims to: 1) describe cannabis experimentation rates among cognitively impaired adolescents schooled in special units (ULIS) in junior high-schools, compared to mainstream students; and 2) to explore factors associated with substance experimentation among ULIS students. A cross-sectional experimental study adapted from the international HBSC/WHO questionnaire was conducted among 700 ULIS students with a mean age of 14.2 years and 7023 students in mainstream junior high-school (mean age: 13.6). Only students aged 14 or more were considered in the analyses (382 ULIS students; 2642 mainstream junior high-school students). The proportion of students in inclusive education enrolled in ULIS who have already experimented cannabis is not as high as among their non-disabled peers (9.1% among ULIS students vs . 20.9% among mainstream junior high-school students), yet is far from being negligible. Thus, to have epidemiological data on cannabis experimentation in intellectually disabled students is crucial to adapt interventions and policies to the cognitive level and specificities of this group of adolescents, in order to increase their chances and opportunities later in adulthood.
Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
Publication . Santos, Teresa; Matos, Margarida Gaspar de; Marques, Adilson; Simões, Celeste; Leal, Isabel; Machado, Maria do Céu
Background: Adolescents with chronic disease (CD) can be more vulnerable to adverse psychosocial outcomes. This study aims: 1) to identify differences in psychosocial variables (health-related quality of life, psychosomatic complaints, resilience, self-regulation and social support) among adolescents who feel that CD affects or does not affect school/peers connectedness (measured by self-reported participation in school and social activities); and 2) to assess the extent to which psychosocial variables are associated with connectedness in school and peer domains.
Methods: A cross-sectional study was conducted in 135 adolescents with CD (51.9% boys), average age of 14 ± 1. 5 years old (SD = 1.5). Socio-demographic, clinical, and psychosocial variables were assessed, using a self-reported questionnaire, which included the Chronic Conditions Short Questionnaire, KIDSCREEN-10 Index, Symptoms Check-List, Healthy Kids Resilience Assessment Module Scale, Adolescent Self-Regulatory Inventory, and Satisfaction with Social Support Scale. Descriptive statistics, GLM-Univariate ANCOVA and Logistic Regression were performed using the IBM Statistical Package for Social Sciences (SPSS), version 22.0. The significance level was set at p < 0.05.
Results: Thirteen to eighteen percent of the adolescents felt that CD affected participation at school (PSCH) and participation in leisure time with friends (PLTF). These adolescents presented lower results for all psychosocial study variables, when compared with adolescents who did not feel affected in both areas of participation. From the studied psychosocial variables, the most important ones associated with PSCH (after controlling for age, gender, diagnosis, and education level of father/mother) were self-regulation and psychosomatic health. Concerning the PLTF, social support was the sole variable explaining such association. Conclusions: The present study pointed out the association between psychosocial variables; and living with a CD and school/peers connectedness. The need to focus on the assessment of the effects of a CD on adolescents’ lives and contexts is suggested, as well as on the identification of vulnerable adolescents. Such identification could help to facilitate the maximization of social participation of adolescents with CD, and to plan interventions centered on providing support and opportunities for a healthy youth development. For that purpose, a complex and multifactorial approach that includes clinicians, schools, family, and peers may be proposed.
Positive youth development in Portugal : a tool towards gender equity?
Publication . Matos, Margarida Gaspar de; Santos, Teresa; Reis, Marta; Goméz-Baya, Diego; Marques, Adilson
Positive Youth Development - PYD pointed out the need to strengthen internal/external
developmental assets in youth’s contexts. Literature suggests gender differences concerning health outcomes,
with girls reporting poorer health outcomes, but higher quality in peer relationships, than boys. This chapter
examines the associations of PYD and its dimensions with psychosocial variables, according to gender.
Through an online survey, 2700 Portuguese college students (73.3% females), with a mean age of 21.3±2.79
years old were included. For both genders, the results showed significant differences and similarities with the
PYD’s total score and its dimensions. Such results reinforce the importance to study positive indicators for
PYD, but taking into account gender issues. More knowledge in this area can help health/education
professionals and policy-makers to better plan interventions/policies. It is aimed to improve an integral and
gender-sensitive healthy perspective for youths, based on interdisciplinary and transdisciplinary work.
Unidades organizacionais
Descrição
Palavras-chave
Contribuidores
Financiadores
Entidade financiadora
Fundação para a Ciência e a Tecnologia
Programa de financiamento
Número da atribuição
SFRH/BD/82066/2011