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When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
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Autores
Orientador(es)
Resumo(s)
This study intends to provide insights into the lives of children who suffer from chronic pain and of their
parents. A qualitative, multi-modal approach was employed, using the draw, write and tell technique with
seven children, and semi-structured interviews with parents. By illustrating that children are active social
agents in the management of chronic pain (even when they are understood by parents as vulnerable), the findings support recent sociological work in the field of childhood health. Indeed, the findings show that children with a chronic condition can take autonomous decisions in relation to disease management even when
supervised by parents.
Descrição
Palavras-chave
children chronic pain parents risk uncertainty
Contexto Educativo
Citação
Hilário, A. P. (2022). When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal. Children and Society, vol. 36 (5), pp. 840-856. (First published 09 January 2022). DOI 10.1111/chso.12542